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Contributors WGK and SG were responsible for managing the project, the overall study conception and study design. MJB interviewed participants. MJB analysed the data and drafted the manuscript with support from CP. All authors commented on drafts and approved the final manuscript.
Funding Supported by a grant from the All Ireland Institute for Hospice and Palliative Care.
Competing interests None declared.
Patient consent Not required.
Ethics approval Methods were ethically approved under arrangements for Research Governance at Ulster University (ref. NHRFC0715).
Provenance and peer review Not commissioned; externally peer reviewed.
Data sharing statement Qualitative data in the form of interview transcripts may be anonymised and made available on request from WGK.