Footnotes

• Correction notice This article has been corrected since it appeared Online First. Minor text change, repitition of sentence.

• Contributors MM devised and wrote the article.

• Funding The authors have not declared a specific grant for this research from any funding agency in the public, commercial or not-for-profit sectors.

• Competing interests MM is a transplant recipient and rare disease patient advocate. He works in cybersecurity, is a former Patient Editor at the BMJ, a global PCORI ambassador and is the Chairman of the American Living Organ Donor Fund.

• Provenance and peer review Not commissioned; internally peer reviewed.