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Correction notice This article has been corrected since it appeared Online First. Minor text change, repitition of sentence.
Contributors MM devised and wrote the article.
Funding The authors have not declared a specific grant for this research from any funding agency in the public, commercial or not-for-profit sectors.
Competing interests MM is a transplant recipient and rare disease patient advocate. He works in cybersecurity, is a former Patient Editor at the BMJ, a global PCORI ambassador and is the Chairman of the American Living Organ Donor Fund.
Provenance and peer review Not commissioned; internally peer reviewed.