Cécile Bour, Md1, Jean-Michel Benattar, Md 2 3, France Légaré, PhD. 4, David Darmon PhD. 3 5 6, Luigi Flora PhD. 3 6
Citizens’ association (NGO) (ONG) Cancer Rose
Citizens’ association (NGO) Maison de la Médecine et de la Culture (MMC)
Patient and Public Partnership Innovation Center (CI3P), Côte d’Azur University, France
Shared Decision Making Knowledge Translation, Laval University, Québec, Canada
Department of Teaching and Research in family Medicine (DERMG), Côte d’Azur University, France
Interdisciplinary Research Laboratory RETInES, Côte d’Azur University, France
Keywords: Shared decision making, patient partnership, cancer screening, informed information, popular education, medical education.
Two citizens’ associations, Cancer Rose and the Maison de la Médecine et de la Culture (MMC), have taken up, each in its own role, the expectations of the citizens’ consultation on breast cancer screening in France (2016). Based on the work carried out by Cancer Rose, a decision support tool was published using French data. At the same time, MMC has promoted the introduction in France of patients, relatives and citizens in a medical school from a training co-designed with the Faculty of Medicine of the University Côte d’Azur: the training in the Art of Care in partnership with the patient, which is a training awarded as educational innovation by the Ministry of Higher Education and Research in 2018. This first partnership between citizens and academics has led to the emergence of the Center for Innovation of Partnership with Patients and the Public (CI3P) within the medical school in Côte d’Azur University itself. The MMC, which organizes citizen events dealing with ethical issues in health, has been given the opportunity to award additional credit hours for general medical students. Cancer Rose and the MMC are organizing monthly webinars between the months of October dedicated to the systematic screening campaign in France. These webinars provide free and informed information likely to allow the development of a critical mindset that favors shared decision making, both for citizens and patients, as well as for health professionals and medical students. This series of webinars is enriched by the participation of an emerging partnership between CI3P and the Canada Research Chair in Shared Decision Making and knowledge translation. CI3P and the research chair contribute to a long-standing partnership between Laval and Côte d’Azur universities, between France and Canada. These monthly participatory webinars, initially co-designed between members of the two associations and citizens (composed of patients, health science students and physicians), propose at each session an exchange initiated by a work of art, mainly but not exclusively narrative, as an introduction to the theme; the topics treated then allow the development of the citizens’ critical spirit in order to provide the means to reach a shared decision, within the framework of the physician-patient relationship, in accordance with the values of the care partnership with the patient.
Objectives Sharing decisions, popular education around cancer screening
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