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239 The undervalued role of nurses in shared decision making: insights from interviews across disease areas in Belgium
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  1. Elise Schoefs1,
  2. Lauren Michiels1,
  3. Charlotte Verbeke1,
  4. Jolien Broekmans1,
  5. Thomas Desmet1,
  6. Evelyn Lerinckx1,2,
  7. Marc Ferrante3,4,
  8. Bram Verstockt3,4,
  9. João Sabino3,4,
  10. Michel Delforge5,
  11. Anneleen Vanhellemont5,
  12. Liesbeth De Waele6,7,
  13. Silène Ten Seldam8,
  14. Kate Morgan8,
  15. Katie Joyner8,
  16. Ariel Aviv9,
  17. Varda Shoham10,
  18. Conny Pelicaen11,
  19. Luc Meeus11,
  20. Lynn Debrun12,
  21. Elien Loddewijkx3,
  22. Noortje Straetemans13,14,
  23. Chantal Van Audenhove15,
  24. Mieke Mommen2,
  25. Rosanne Janssens1,
  26. Séverine Vermeire3,4,
  27. And Isabelle Huys1
  1. 1Department of Pharmaceutical and Pharmacological Sciences, KU Leuven, Leuven, Belgium
  2. 2Pfizer NV, Elsene, Belgium
  3. 3Department of Gastroenterology and Hepatology, University Hospitals Leuven, KU Leuven, Leuven, Belgium
  4. 4Department of Chronic Diseases and Metabolism, KU Leuven, Leuven, Belgium
  5. 5Department of Hematology, University Hospital Leuven, Leuven, Belgium
  6. 6Department of Child Neurology, University Hospitals Leuven, Leuven
  7. 7Department of Development and Regeneration, KU Leuven, Leuven
  8. 8Myeloma Patients Europe, Brussels, Belgium
  9. 9Department of Hematology, Ha’Emek medical center, Afula, Israel
  10. 10AMEN association, Kiron, Israel
  11. 11Duchenne Parent Project, Haacht, Belgium
  12. 12Crohn and Colitis ulcerosa Vereniging (CCV) VZW, Heverlee, Belgium
  13. 13Department of Gastroenterology, az Vesalius, Tongeren, Belgium
  14. 14Belgian IBD Nurses and Study Coordinators Association (BINAStoria), Zaventem, Belgium
  15. 15LUCAS Center for Care Research and Consultancy, KU Leuven, Leuven, Belgium

Abstract

Introduction Most shared decision making (SDM) models have been limited to the patient-clinician dyad and do not include nurses. The goal of this study is to investigate nurse’s role in the SDM process in inflammatory bowel disease (IBD), multiple myeloma (MM), and Duchenne muscular dystrophy (DMD).

Methods A comparative analysis was performed, based on three disease-specific qualitative studies using semi-structured interviews with patients (n=25), caregivers (n=11), clinicians (n=18), nurses (n=14), and other members of the multidisciplinary team (n=14) involved in the care pathway of IBD, MM, or DMD patients in Belgium.

Results Across disease areas, participants underscored the crucial role of nurses in the SDM process as an accessible point of contact for patients that can provide emotional, informational, and decisional support. Specifically for IBD and MM, nurses’ complementary role to gastroenterologists and haematologists was emphasized, performing the steps of the OPTION instrument that clinicians either did not execute or executed to a lesser extent. However, the allocation of tasks and responsibilities to nurses varied based on the hospital and clinician, thereby influencing the extent of nurses’ role in SDM. In DMD also other members of the multidisciplinary team next to nurses and clinicians had a role in the SDM process (table 1).

Discussion and Conclusion Results indicate the need for an increased recognition and a more strengthened role of the nurse in the SDM process. Future research should develop an interprofessional SDM model specific to IBD, MM, and DMD, as it could enhance the multidisciplinary nature of care delivery and its overall quality thereof.

Abstract 239 Table 1

Different roles in the shared decision making process of the multidisciplinary team involved in the care of individuals with Duchenne muscular dystrophy

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