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275 The impact of diabetes on the lives of young adults with type 1 diabetes: a photovoice study
  1. Anka Van Gastel1,2,
  2. Anne Stiggelbout1,3,
  3. Matthijs Graner4,
  4. Victor M Montori5,6,
  5. Viet-Thi Tran7,8,9,
  6. Sean Dinneen10,11,
  7. Jessica Mesman12,
  8. Joris Swaak13,
  9. Henk-Jan Aanstoot14,
  10. Eelco De Koning2,
  11. Marleen Kunneman1,5
  1. 1Biomedical Data Sciences, Leiden University Medical Center, Leiden, the Netherlands
  2. 2Internal Medicine, Leiden University Medical Center, Leiden, The Netherlands
  3. 3Erasmus School of Health Policy and Management, Erasmus University Rotterdam, the Netherlands
  4. 4The ééndiabetes foundation, Amsterdam, the Netherlands
  5. 5Knowledge and Evaluation Research Unit, Mayo Clinic, Rochester MN, USA
  6. 6Division of Endocrinology, Diabetes and Metabolism, Mayo Clinic College of Medicine, Rochester MN, USA
  7. 7General Medicine, Paris Diderot University, Paris, France
  8. 8METHODS Team, Centre for Research in Epidemiology and Statistics (CRESS), Université Paris Cité, INSERM, Paris, France
  9. 9Centre d’Épidémiologie Clinique, HôpitalHôtel-Dieu, Paris, France
  10. 10Galway University Hospitals, Galway, Ireland
  11. 11Department of Medicine, NUI Galway, Galway, Ireland
  12. 12Department of Society Studies, Maastricht University, Maastricht, the Netherlands
  13. 13Panton Medical Design Agency, Deventer, the Netherlands
  14. 14Diabeter: Center for Pediatric and Adult Diabetes Care and Research, Rotterdam, the Netherlands

Abstract

Introduction Three out of four young adults with type 1 diabetes (w/T1D) report that their investment of time, energy, and efforts in healthcare is unsustainable over time. This study aimed to assess 1) what young adults w/T1D do to make diabetes care fit in their lives, and 2) the impact of diabetes and diabetes care on their lives.

Methods We invited 30 young adults w/T1D to a photovoice study. Participants submitted photographed real-life situations that captured what they do to make care fit, or the impact of diabetes care on their lives. For each photo, participants provided a title, their emotional state, and, optionally, a description. After two weeks, participants answered open-ended questions on their submitted photos or issues that had not been photographed. In a short semi-structured telephone interview, participants reviewed their photographs. They were asked to reflect on important themes, and to what extent they discuss these themes with their clinicians.

Results Currently, 5 participants have been enrolled. Data collection will be completed in January 2024. Preliminary analysis suggests a broad range of situations, emotions and themes relevant to the efforts to implement care, or to the impact of diabetes care (see figure 1).

Discussion/Conclusion Our study will help understand the adjustments young adults make to their care or their lives, to make these better aligned. In our next steps, we are working with young adults to explore how to better support them in discussing these adjustments with their clinician while they design care plans together.

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