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Shared decision making with breast cancer patients – does it work?
307 Digital health literacy and person-centered care: a massive open online course (MOOC) for women with breast cancer
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  1. Yolanda Álvarez-Pérez1,2,3,
  2. Andrea Duarte-Díaz1,2,3,
  3. Alezandra Torres-Castaño1,2,3,
  4. Vanesa Ramos-García1,2,3,
  5. Ana Toledo-Chávarri1,2,3,
  6. Analía Abt-Sacks1,2,3,
  7. Pepita Giménez-Bonafé4,
  8. Tania Estapé Madinabeitia5,
  9. Anna Selva Olid6,
  10. Carina González González7,
  11. Lilisbeth Perestelo-Pérez2,3,8
  1. 1Canary Islands Health Research Institute Foundation (FIISC), Santa Cruz de Tenerife, Spain
  2. 2The Spanish Network of Agencies for Health Technology Assessment and Services of the National Health System (RedETS), Santa Cruz de Tenerife, Spain
  3. 3Network for Research on Chronicity, Primary Care, and Health Promotion (RICAPPS), Santa Cruz de Tenerife, Spain
  4. 4Physiological Sciences Department, Medicine and Health Sciences School, University of Barcelona (UB), Barcelona, Spain
  5. 5Department of Psycho-oncology, FEFOC Foundation, Barcelona, Spain
  6. 6Parc Taulí Hospital Universitari. (I3PT-CERCA). Universitat Autònoma de Barcelona, Sabadell, Spain
  7. 7University of La Laguna, La Laguna, Spain
  8. 8Evaluation Unit (SESCS), Canary Islands Health Service (SCS), Santa Cruz de Tenerife, Spain

Abstract

Introduction Person-Centered Care (PCC) and Digital Health Literacy (DHL) interventions can enhance understanding of online health information and empower patients, optimizing healthcare. Massive Open Online Courses (MOOCs) can provide flexible access and adapted educational resources and are a useful selfcare strategy to chronic patients. The aim of this study is to assess the acceptability and effectiveness of a MOOC designed for women with breast cancer (BC), consisting of educational materials on PCC and DHL developed through a co-creation process.1

Methods Forty-three Spanish-speaking women (48.72±10.18 years) with BC, along with their family members/caregivers and healthcare professionals, were recruited through convenience non- probabilistic sampling. Primary outcomes: 1) Change in self-perceived health literacy and DHL after completing the MOOC assessed through the European Health Literacy Survey Questionnaire (HLS-EU- Q16) and eHealth Literacy Scale (eHEALS); 2) Knowledge acquired in each unit (covering BC, PCC, DHL, self-care, etc.); and 3) MOOC acceptability (questionnaire based on the Technology Acceptance Model methodology).

Results Self-perceived health literacy increased significantly after completion of the MOOC (p < 0.05). Knowledge acquired after completing the MOOC was high: 9.11 points out of 10. Most participants positively evaluated the acceptability of the MOOC in terms of readability, content, relevance, and suitability of MOOC objectives.

Discussion Preliminary results suggest that digital educational interventions, like MOOCs, designed through a co-creation methodology with their target audience, are acceptable for the target population and could be an effective strategy to enhance knowledge and self-perception of DHL. Assessing these preliminary results in controlled studies could provide strengthened conclusions about these resources in patients with chronic diseases, such as BC.

Conclusion MOOC can be a feasible strategy to improve the digital health literacy, knowledge, self- care, and PCC challenges of women with BC showing high acceptability.

Reference

  1. Álvarez-Pérez Y, Duarte-Díaz A, Toledo-Chávarri A, Abt-Sacks A, Ramos-García V, Torres-Castaño A, Rivero-Santana A, Perestelo-Pérez L. Digital Health Literacy and Person-Centred Care: Co-Creation of a Massive Open Online Course for Women with Breast Cancer. Int J Environ Res Public Health. 2023;20(5):3922.

https://doi.org/10.1136/bmjebm-2024-SDC.306

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