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032 Shared decision-making in patients with chronic conditions among the French e-cohort compare: an online cross-sectional survey
  1. Yaël Busnel1,
  2. France Legare2,
  3. Nora Moumjid3,
  4. Laurie Panse1,
  5. Annaëlle Testud1,
  6. Viet-Thi Tran4,
  7. Julie Haesebaert1,5
  1. 1Research on Healthcare Performance (Reshape), Inserm U1290, University Lyon 1, Lyon, France
  2. 2Department of Family Medicine and Emergency Medicine, Université of Laval, Quebec, Canada
  3. 3Claude Bernard Lyon 1 University, P2S UR4129, Léon Bérard Cancer Centre, Lyon, France
  4. 4ComPaRe, Communauté de Patients pour la Recherche – CRESS, Centre de Recherche Epidémiologie et StatistiqueS – Inserm, UMR1153, Paris University/Centre d’Epidémiologie Clinique, AP-HP
  5. 5Hospices Civils de Lyon, Pôle Santé Publique, Service Recherche et Epidémiologie Cliniques, F-69003 Lyon, France


Patients living with chronic conditions face many decision-making challenges during their lifetime with their disease. We aimed to assess the level of Shared Decision-Making (SDM) perceived by patients with chronic conditions in France.

A cross-sectional survey was conducted in ComPaRe, a nationwide e-cohort of adult patients with chronic conditions. Data were weighted to represent patients with at least one chronic condition in France. We asked participants how they perceived the level of SDM for the most important health decision taken in the past 12 months by using the French version of the 9-item Shared Decision- Making Questionnaire (SDM-Q-9), ranging from 0 to 100. We described the level of SDM and studied factors associated with.

From April 6 to May 18, 2023, 2097 participants answered the survey (73.0% were female, median (IQR) age was 51 (38–61) and 71.0% had a high education level. The mean (+/-SD) SDM-Q-9 score was 63 ± 27 with the highest score for decisions regarding cancer (72+/-25) and, the lowest for dermatological conditions, (60+/-27). Mean SDM-Q-9 was also higher among men (73+/-27) than women (62 +/- 27) were. Disparities also emerged regarding the type of decision, with higher SDM-Q- 9 levels for decisions regarding surgery (71+/-25) compared to drug related decisions (60+/-28).

Multivariable analysis retrieved that being male, employed, having cancer, a high level of health literacy, perceiving lower treatment burden and taking decisions about surgery were associated with higher SDM-Q-9 level.

French patients with chronic diseases perceived a high level of SDM but we identified disparities in SDM level depending on gender, chronic disease or type of decision. It is the first nationwide population-based survey to evaluate the level of SDM among patients with chronic diseases.

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