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043 Co-producing the first triadic patient experience measure of shared decision making in mental health: from qualitative insights to digital innovation
  1. Marta Chmielowska1,2,3,
  2. Yaara Zisman-Ilani3,4,
  3. Rob Saunders1,3,
  4. Stephen Pilling1,3
  1. 1Research Department of Clinical, Educational and Health Psychology, University College London, London, UK
  2. 2The North East London NHS Foundation Trust Research and Development Department, London, UK
  3. 3Department of Clinical, Educational and Health Psychology, University College London, London UK
  4. 4Social and Behavioural Sciences, Temple University College of Public Health, Philadelphia, PA, USA


Introduction Shared Decision Making (SDM) is a health communication model that promotes patient- cantered care that is not routinely used in mental health. This is partly because none of the existing SDM measures have been co-produced with people with mental illness and their families, and there is no consensus on outcomes as primary targets of SDM mental health research.

Methods Phase I included systematic reviews of existing SDM interventions and measures in mental health. Phase II involved the development of the new SDM measure using stakeholder feedback in an iterative process. Stakeholders were diverse groups of people with mental illness, their family members, and clinicians recruited from community mental health services in England. The goal of phase III is to transform the new measure into a digital app for adoption across mental health services in the UK.

Results A pool of draft questions was generated covering all aspects of the identified themes. These questions were refined after discussions with people with mental illness and academic experts in measure development. Following the evaluation of its psychometric properties, the new measure will be transformed into a digital application, with the collaboration of people with mental illness and their families.

Discussion Since SDM is associated with improved patient experience and clinical outcomes, the new measure will support better mental health service provision and reduce historic inequalities in mental healthcare. By considering the perspectives of patients and their families in clinical decision-making, it will optimise care, help identify areas that are important to them and reduce the need for tests that are less likely to be in their interest.

Conclusion The new SDM measure will capture for the first time a clinician-patient-family member interaction in treatment decision-making, ushering in a new era of comprehensive and collaborative mental healthcare planning.

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