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053 Co-design of a patient-centered transition program to empower stroke survivors and their caregivers in their recovery pathway – a user-centered design approach
  1. Marion Delvallee1,
  2. Mathilde Marchal2,
  3. Anne Termoz1,2,
  4. Ouazna Habchi2,
  5. Laurent Derex1,3,
  6. Anne-Marie Schott1,2,
  7. Julie Haesebaert1,2
  1. 1Research on Healthcare Performance Reshape, Inserm U1290, Université Claude Bernard Lyon 1, Lyon, France
  2. 2Service Recherche et Epidémiologie Cliniques, Hospices Civils de Lyon, Pôle de Sante Publique, Lyon, France
  3. 3Service Neuro-vasculaire, Hospices Civils de Lyon, Hôpital Pierre Wertheimer, Lyon, France

Abstract

Introduction During the hospital-to-home transition, stroke survivors and their caregivers face a significant lack of support and information that accentuates their psychosocial burden and impair their ability to be actor of their psychosocial recovery. We aimed to co-design a program combining case- management and an online information platform to address psychosocial needs of stroke survivors and caregivers.

Methods A two-step methodology was used. The first step followed a ‘user-centered design’ approach during 4 workshops with end-users to develop the platform and define the case-manager profile. The second step was a usability test of the platform following a Think Aloud method with patients and caregivers. The workshops and interviews were audio recorded and a qualitative thematic analysis was conducted. The analysis of Think Aloud interviews was based on User Experience Honeycomb framework.

Results Eight participants attended the workshops: 2 patients, 2 caregivers, 3 nurses and a general practitioner. Activities, training and skills of the case-manager were defined according to stroke survivors and caregivers needs. Name, graphics, navigation, and content of the platform were developed with the participants, a developer and a graphic designer. The usability of the platform was tested with 5 patients and 5 caregivers. The Think Aloud confirmed satisfaction with graphics and content but a need for improvement regarding the navigability.

Discussion The co-design approach, conducted in partnership with end-users (patients, caregivers, and health professionals), and web designers, enabled us to construct the Navistroke transition recovery program based both on theory and on the needs of stroke survivors and their caregivers. We hypothesized the program will improve psychosocial recovery of stroke survivors and caregivers.

Conclusion We developed, with a participatory approach, a patient centered transition program, which will be evaluated in a randomized controlled trial.

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