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  • 072 Co-producing a patient decision aid to support shared decision making and treatment choices for patients with chronic obstructive sleep apnea

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ISDM Conference – AMH Randomised Trial Abstract
072 Co-producing a patient decision aid to support shared decision making and treatment choices for patients with chronic obstructive sleep apnea
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  1. Pia K Fabricius1,
  2. Mette M Nielsen1,
  3. Lisbeth B Sørensen1,
  4. Camilla Andersen1,2,
  5. Susanne S Andersen1,
  6. Asbjørn Kørvel-Hanquist1,3,
  7. Bente Rasmussen1,
  8. Mathias R Sarkez-Knudsen1,3,
  9. Thora G Thomsen1,3
  1. 1Department of Otorhinolaryngology Surgery, Zealand University Hospital (SUH), Køge, Denmark
  2. 2The Department of Regional Health Research, University of Southern Denmark, Odense, Denmark
  3. 3Department of Clinical Medicine, University of Copenhagen, Denmark

Abstract

Introduction Person-centered care is essential for the estimated 300.000 Danish patients living with obstructive sleep apnea (OSA). Continuous Positive Airway Pressure (CPAP) is considered the treatment of choice, yet many patients have challenges with adherence, which increases their risk of cardiovascular diseases, diabetes, daytime sleepiness, and traffic accidents, among other risks.

This project is part a cross-regional project where new treatment options are developed in a collaborative partnership between patients, relatives, researchers, and companies in Denmark, Sweden, and Norway.

More treatment options may complicate communication. Therefore, a patient decision aid (PtDA) is needed to support patients and healthcare providers in their communication and shared decision- making (SDM) processes.

The aim of this project is to coproduce a tailored PtDAs to help patients and healthcare providers make treatment choices tailored to the patients’ preferences and needs.

Methods The development follows a systematic process with a high degree of user involvement, as recommended in the International Patient Decision Aid Standards (IPDAS). Data consist of qualitative data from a feedback meeting with patients and relatives, a focus group interview with healthcare providers, a scoping review, and iterative prototype workshops. We also involve an external stakeholder group of medical doctors from our Nordic collaboration group, medical doctors from the rural area, as well as patient representatives. The qualitative data are analyzed with thematic analysis. Results: At the ISDM conference, we will share preliminary findings from the feedback meeting with patients and relatives and the focus group interview on healthcare professionals’ decision-making support needs.

Discussion and Conclusion A co-produced PtDA is an encouraging strategy for involving OSA patients in treatment related dialogue. However, not all patients are comfortable with options, therefore particular emphasis is needed to understand how OSA patients are optimally prepared for participating in SDM with more treatment choices

https://doi.org/10.1136/bmjebm-2024-SDC.71

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