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095 Engagement of older adults receiving home care services and their caregivers in health decisions in partnership with clinical teams to prioritize and culturally adapt decision aids for home care
  1. Sabrina Guay-Bélanger1,
  2. Yan Julien1,
  3. Emmanuelle Aubin1,
  4. Marie Cimon1,
  5. Patrick Archambault1,2,3,4,
  6. Virginie Blanchette1,5,
  7. Anik Giguere1,2,6,
  8. Amédé Gogovor1,2,
  9. Michèle Morin1,3,6,7,
  10. Ali Ben Charif8,
  11. Nouha Ben Gaied9,
  12. Julie Bickerstaff10,
  13. Nancy Chénard11,
  14. Julie Emond11,
  15. Julie Gilbert12,
  16. Isabelle Violet13,
  17. France Légaré1,2,6
  1. 1VITAM – Centre de recherche en santé durable, Centre intégré universitaire de santé et de services sociaux de la Capitale-Nationale, Quebec, Canada
  2. 2Department of Family Medicine and Emergency Medicine, Université Laval, Quebec, Canada
  3. 3Centre de recherche intégrée pour un système apprenant en santé et services sociaux, Centre intégré de santé et de services sociaux de Chaudières-Appalaches, Levis, Canada
  4. 4Department of Anesthesiology and Intensive Care, Université Laval, Quebec, Canada
  5. 5Department of Human Kinetics and Podiatric Medicine, Université du Québec à Trois-Rivières, Trois-Rivières, Canada
  6. 6Centre d’excellence sur le vieillissement de Québec, Centre intégré universitaire de santé et de services sociaux de la Capitale-Nationale, Quebec, Canada
  7. 7Department of Medicine, Université Laval, Quebec, Canada
  8. 8CubecXpert, Quebec, Canada
  9. 9Fondation Berthiaume-Du Tremblay, Montreal, Canada
  10. 10L’Appui pour les proches aidants, Montreal, Canada
  11. 11Centre intégré de santé et de services sociaux de Chaudière-Appalaches, Levis, Canada
  12. 12Centre intégré universitaire de santé et de services sociaux de la Capitale-Nationale, Quebec, Canada
  13. 13Ministère de la santé et des services sociaux du Québec, Quebec, Canada

Abstract

Introduction We aimed to prioritize and culturally adapt patient decision aids (PtDAs) for older adults receiving home care in Quebec.

Method A steering committee comprising older adults, caregivers, health professionals, policy makers, community representatives, and researchers oversaw this multimethod study. This committee selected 10 PtDAs based on relevance and quality from among 33 identified in a systematic review. We aimed to recruit 60 participants (older adults, caregivers, health professionals, policy makers and PtDA experts) using the snowball method for a 2-round eDelphi to prioritize the PtDAs. In the 1st round, participants ranked PtDAs according to criteria regarding the decision point (prevalence, difficulty, values and preferences, evidence update), with the importance of each criterion rated on a 5-point Likert scale. PtDAs with one or more criteria judged as important by at least 75% of participants were retained for a 2nd round using the same criteria. We expect to retain a maximum of 3 PtDAs for cultural adaptation to the Quebec health care system.

Results Email and social media invitations generated 60 potential participants, 42 of whom completed the 1st eDelphi round. Participants were older adults (14.3%), caregivers (28.5%), healthcare professionals (30.9%), managers (16.7%), members of community organizations (4.8%) and PtDA experts (4.8%). Most were women (85.7%), aged 35 to 54 years (50.0%), urban residents (53.7%) and university-educated (42.9%). They prioritized 6 PtDAs for the 2nd round. The 2 criteria most frequently identified as important were decision difficulty and values and preferences. The 2nd Delphi round is being prepared.

Discussion This study was developed in response to the decisional needs of older adults and their families.

Conclusion Our findings will provide relevant, culturally appropriate PtDAs for older adults making difficult decisions in the province of Quebec.

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