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011 Development and nation-wide implementation of a patient decision aid including real-world outcome information to support shared decision making about treatment for non-small cell lung cancer
  1. Jet W Ankersmid1,
  2. Regina The2,
  3. Ewoudt MW van de Garde3,4,
  4. Olga C Damman5,
  5. Anne V Ogelaar1,
  6. Cornelia F van Uden1
  1. 1Santeon, Utrecht, The Netherlands
  2. 2ZorgKeuzeLab, Delft, The Netherlands
  3. 3Department of Clinical Pharmacy, St. Antonius Hospital, Utrecht/Nieuwegein, The Netherlands
  4. 4Division of Pharmacoepidemiology and Clinical Pharmacology, Utrecht Institute for Pharmaceutical Sciences, Utrecht, The Netherlands
  5. 5Department of Public and Occupational Health and Amsterdam Public Health research institute, Amsterdam UMC, Vrije Universiteit Amsterdam, Amsterdam, The Netherlands


Introduction The importance of Shared Decision Making (SDM) in cancer care is increasingly recognized for non-small cell lung cancer (NSCLC), where treatment decisions are complex and impactful. This project aims to enhance SDM in NSCLC care by combining two patient decision aids (PtDAs) into a renewed Lung Cancer Decision Aid (LC-PtDA), integrating patient-like-me (PLM) outcome data, and implementing it in 20 Dutch hospitals over 30 months.

Methods The renewed LC-PtDA is developed through co-creative working group sessions involving patients (including patients with lower health literacy), healthcare professionals, and other stakeholders. It combines: 1) A PLM data module which displays real-world data of patients with stage IV NSCLC, including treatment choices, outcomes, and survival data. 2) A PtDA designed to facilitate SDM for treatments across all stages of NSCLC. The development process includes usability and alpha testing with patients and healthcare professionals. The renewed LC-PtDA will then be implemented stepwise with five hospitals starting implementation every six months. Implementation will include the development of local implementation plans, training and instruction for health care professionals, short- cycle evaluations and promotion of implementation through local ambassadors.

Results The integration process for the LC-PtDA is in progress, with completion targeted for January 2024. Feedback from usability testing has resulted in several adaptations to the PLM data module, and ongoing alpha testing is set to conclude by January 2024. The first ten hospitals are scheduled to start implementation in early 2024.

Discussion Integrating PLM data into the LC-PtDA is expected to enhance the SDM process in NSCLC care, empowering patients with complex medical information in an accessible format. This approach aims to drive a nationwide shift in decision-making for NSCLC treatments across Dutch hospitals.

Conclusions In this presentation we will present the LC-PtDA, the PLM data module, and the results of the first implementation round(s).

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