Article Text

Download PDFPDF
162 Co-construction of an intervention for low health literacy heart failure patients to improve their understanding and management of their disease at hospital discharge
  1. Mathilde Marchal1,2,
  2. Estelle Bravant1,2,
  3. Ouazna Habchi2,
  4. Damien Hoarau1,2,
  5. Manon Verroul2,
  6. Namya Khadraoui2,
  7. Julie Haesebaert1,2,
  8. Anne-Marie Schott1,2
  1. 1Research on Healthcare Performance RESHAPE, INSERM U1290, Université Claude Bernard Lyon 1, Lyon, France
  2. 2Service Recherche et Epidémiologie Cliniques, Hospices Civils de Lyon, Pôle de Sante Publique, Lyon, France


Introduction In a previous study we found half of heart failure (HF) patients had a low level of health literacy (low-HL) which increases difficulty to understand their disease, and the risk of medication non- adherence and re-hospitalization. To improve self-care management of low-HL patients with HF, we involved HF patients to co-construct an intervention aiming at empowering them by providing access to adapted and personalized information and improving self-confidence.

Methods A participatory action research was conducted following the Ophelia method, which aims to help building and implementing interventions and solutions to improve access to appropriate health information. Two workshops were conducted to develop an intervention combining follow-up with a health consultant and an individualized information binder for each patient. The workshops were audio recorded and a qualitative analysis was conducted.

Results We recruited 6 patients with different levels of HL, 4 men and 2 women. The follow-up with the health consultant was defined. The patients insisted on the crucial importance of establishing a real relationship of trust between healthcare professional and patient and shared with us some ideas for improving trust. The various information sheets (diet, warning signs and medication) in the binder were worked on with the patients and they highlighted the positive and negative points of the various sheets. Patients explained what they needed when they returned home.

Discussion Participatory action research carried out in partnership with patients and healthcare professionals involved in the care of HF patients has enabled us to build this intervention to improve self-care management of low HL patients with HF.

Conclusion We identified the barriers and facilitators to implementing implementing the intervention and validated all the sheets. The next step will be to assess the intervention within a randomized study.

Statistics from

Request Permissions

If you wish to reuse any or all of this article please use the link below which will take you to the Copyright Clearance Center’s RightsLink service. You will be able to get a quick price and instant permission to reuse the content in many different ways.