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164 Individual peer support for stroke survivors – participatory action research to codesign an peer helper intervention
  1. Marchal Mathilde1,2,
  2. Termoz Anne1,2,
  3. Habchi Ouazna2,
  4. Derex Laurent1,3,
  5. Huchon Laure4,5,
  6. Rode Gilles4,5,
  7. Schott Anne-Marie1,2,
  8. Haesebaert Julie1,2
  1. 1Research on Healthcare Performance RESHAPE, INSERM U1290, Université Claude Bernard Lyon 1, Lyon, France
  2. 2Service Recherche et Epidémiologie Cliniques, Hospices Civils de Lyon, Pôle de Sante Publique, Lyon, France
  3. 3Service Neuro-vasculaire, Hospices Civils de Lyon, Hôpital Pierre Wertheimer, Lyon, France
  4. 4Service de médecine physique et réadaptation, hôpital Henry Gabrielle, Hospices Civils de Lyon, Saint-Genis- Laval, France
  5. 5Equipe ‘Trajectoires’, Centre de Recherche en Neurosciences de Lyon, Inserm UMR-S 1028, CNRS UMR 5292, Université de Lyon, Université Lyon 1, Bron, France

Abstract

Introduction Due to the brutality of stroke and increasingly shorter in-hospital lengths of stay, patients and their families must adapt quickly after acute stroke to the patient‘s new health functioning and the new caregiving role for family members. Peer support, ie support of patient by another patient who previously experienced the same situation, could be an innovative approach to address these issues. We aim to codesign a peer-helper intervention to support patients discharge and improve their community reintegration after stroke.

Methods A participatory action research was conducted following Bandura’s social learning theory and based on the results of a previous needs assessment study. For this, 3 workshops lasting 2h30 were conducted. Participants were patients and health professionals working with stroke survivors. In order to develop the profile of the peer helper, a qualitative analysis was conducted iteratively based on participant observation and workshops vocal recordings.

Results We recruited 8 participants: 3 patients, a rehabilitation physician, a social worker, a physiotherapist, 2 occupational therapists. During the first workshop, patients reported psychosocial and informational needs after discharge and proposed tasks and positioning of a peer helper. During the following two workshops, patients and health professionals defined the skills, tasks, tools, training and supervision of the peer-helper. Barriers and facilitators to implement peer-helper intervention were identified.

Discussion Participatory action research carried out in partnership with patients and healthcare professionals involved in the care of stroke survivors has enabled us to build this intervention to improve patients community reintegration after stroke.

Conclusion We developed, with a participatory approach, our peer support intervention by defining the status, profile, training, activity and interactions with patients. The next step will be to assess the intervention within a randomized study.

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