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017 Registration of medical consultations in oncology: a participatory approach to elaborate a research project
  1. Marie Bannier1,3,
  2. Francesca Mininel1,3,
  3. Julia Tinland2,3,
  4. Julien Mancini2,3,
  5. Sandrine de Montgolfier2,3
  1. 1Paoli Calmettes Cancer Center, Marseille, France
  2. 2Aix Marseille University, Marseille, France
  3. 3Sesstim, Inserm, Ird, Isspam, Marseille, France


Introduction Medical consultations are sensitive because of the difficulty of transmitting information. The possibility of recording it can help the patient to recall and understand information, or to share it with carers, improves care and contributes to a favourable context for an informed decision. The Covid pandemic was a driving force behind this practice, as accompanying persons were often forbidden during consultations. The consultation was recorded at the patient‘s request. Nonetheless, there is still a great deal of reluctance on this subject.

Methods To build research that would be acceptable to patients, healthcare professionals (HCPs) and institutions alike, we chose to initiate a participatory approach involving several stakeholders. The project was presented at a participatory workshop at the inauguration of the Health Democracy Chair DemoCan in 2022. The workshop continued with a working group (WG) on the theme of digital health and the impact of Covid, involving HCPs, researchers, patients.

Results The conclusions after 4 WG meetings were:The issue of recording is controversial among HCPs but can be overcome by repeated discussions.There are no recent French studies on this subject, despite the abundance of international literature proving the benefits through randomised studies. A collaborative research project was developed, in which women affected by breast cancer could propose to their HCPs to record part of the consultation if this was not yet offered, and to report back to us on the obstacles and levers they had encountered. The project was presented to a panel of patients, HCPs and researchers from a national network at the autumn university of Democan in 2023, in order to refine the research question and methodology.

Conclusion The participatory construction phase of this research project with WGs will be finalised mid-2024.

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