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176 Experiences, needs and barriers reported by patients and gastroenterologists with respect to shared decision making in inflammatory bowel disease: a qualitative interview study
  1. Elise Schoefs1,
  2. Lauren Michiels1,
  3. Noortje Straetemans2,3,
  4. Marc Ferrante4,5,
  5. Bram Verstockt4,5,
  6. João Sabino4,5,
  7. Lynn Debrun6,
  8. Elien Loddewijkx4,
  9. Chantal Van Audenhove7,
  10. Rosanne Janssens1,
  11. Séverine Vermeire4,5,
  12. Isabelle Huys1
  1. 1Department of Pharmaceutical and Pharmacological Sciences, KU Leuven, Leuven, Belgium
  2. 2Department of Gastroenterology, az Vesalius, Tongeren, Belgium
  3. 3Belgian IBD Nurses and Study Coordinators Association (BINAStoria), Zaventem, Belgium
  4. 4Department of Gastroenterology and Hepatology, University Hospitals Leuven, KU Leuven, Leuven, Belgium
  5. 5Department of Chronic Diseases and Metabolism, KU Leuven, Leuven, Belgium
  6. 6Crohn and Colitis ulcerosa Vereniging (CCV) VZW, Leuven, Belgium
  7. 7LUCAS Center for Care Research and Consultancy, KU Leuven, Leuven, Belgium


Introduction Shared decision making (SDM) is a strategy to facilitate patient-centered care and is becoming increasingly important in inflammatory bowel disease (IBD). This study aimed to understand the views of IBD patients and gastroenterologists regarding SDM and more specifically: i) the potential role and their understanding of SDM, ii) barriers and facilitators for implementing SDM in IBD clinical practice.

Methods In this qualitative study, semi-structured interviews were held with IBD patients (n=15), and gastroenterologists (n=11) in Belgium. Interviews were transcribed ad verbatim and analyzed using thematic framework analysis. Ottowa Model of Research Use (OMRU) was used as guiding model to identify barriers and facilitators for implementing SDM1]

Results While the importance of SDM in IBD was recognized by most participants, some were either unaware of the concept of SDM or had misconceptions about it. Furthermore, the study found several barriers and facilitators for implementing SDM in IBD clinical practice (table 1). Participants highlighted the importance of the IBD nurse and education about SDM for physicians to overcome these barriers.

Discussion Even though participants recognized the importance of SDM in managing IBD, a lack of time and belief in traditional decision models among other factors hinder its systematic implementation. The gastroenterologist should adopt a patient-centric approach, incorporating SDM that considers each patients’ distinct needs and obstacles.

Conclusion This study underlines the necessity for education and training on SDM specifically for gastroenterologists in Belgium. Additionally, patient organizations can contribute to raising awareness about SDM.

Abstract 176 Table 1

Examples of most mentioned barriers and facilitators by patients at gastroenterologists at different levels


  1. Boland L, Graham ID, Légaré F, Lewis K, Jull J, Shephard A, et al. Barriers and facilitators of pediatric shared decision-making: a systematic review. Implementat Sci 2019;14.

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