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210 Phase one of a randomized controlled trial to analyze the effectiveness and cost-effectiveness of a virtual community of practice to empower middle-aged patients with multimorbidity: co-creation process
  1. Vanesa Ramos-García1,2,3,4,
  2. Alba Campillejo-García5,
  3. Débora Koatz6,7,
  4. Ileana Gefaell-Larrondo5,
  5. Anthea Santos-Álvarez1,
  6. Francisco Javier García-García8,
  7. Jaime Barrio-Cortes5,
  8. Santiago Dominguez-Coello9,
  9. Marta Ruíz-López10,
  10. María Eugenia Tello-Bernabé11,
  11. Carmen Suárez-Fernández1,2,
  12. Patricia Quiroga-Colina1,2,
  13. Esther Vicente-Rabaneda1,2,
  14. Jose Ramón Vazquez1,3,
  15. Aránzazu Hernández-Yumar1,3,4,
  16. Analía Abt-Sacks1,2,4,
  17. Beatriz Ugalde-Abiega14,
  18. Amaia Calderón-Larranaga15,
  19. Alezandra Torres-Castaño1,3,4,
  20. Yolanda Álvarez-Pérez1,3,4,
  21. Andrea Duarte-Díaz1,3,4,
  22. Patricia Cifuentes-Pérez16,
  23. Sofía Garrido-Elustondo17,
  24. Pedro Parra-Caballero12,
  25. María Candelaria Martín-González18,
  26. Ana Belén Ramirez-Puerta19,
  27. Beatriz González-De León13,
  28. María Consuelo Company-Sancho20,
  29. Carola Orrego4,6,7,
  30. Ana Isabel González-González21,
  31. Lilisbeth Perestelo-Pérez3,4,22
  1. 1Canary Islands Health Research Institute Foundation (FIISC), Tenerife, Spain
  2. 2University of La Laguna (ULL), Tenerife, Spain
  3. 3The Spanish Network of Agencies for Health Technology Assessment and Services of the National Health System (RedETS), Tenerife, Spain
  4. 4Network for Research on Chronicity, Primary Care, and Health Promotion (RICAPPS), Tenerife, Spain
  5. 5Research and Innovation Foundation for Primary Care (FIIBAP), Madrid, Spain
  6. 6Avedis Donabedian Research Institute (FAD), Barcelona, Spain
  7. 7Universitat Autónoma de Barcelona, Barcelona, Spain
  8. 8Nuestra Señora de La Candelaria University Hospital, Tenerife, Spain
  9. 9La Victoria Health Center – Teaching Unit of Family and Community Care
  10. 10Vicente Muzas Health Center, Madrid, Spain
  11. 11El Espinillo Health Center, Madrid, Spain
  12. 12La Princesa Hospital, Madrid, Spain
  13. 13Primary Care Management of Tenerife, Spain
  14. 14Ramón y Cajal Hospital, Madrid, Spain
  15. 15Karolinska Institutet, Sweden
  16. 16Alcorcón Foundation Hospital, Madrid, Spain
  17. 17Multiprofessional Teaching Unit of Family and Community Care Southeast
  18. 18University Hospital of the Canary Islands, Tenerife, Spain
  19. 19San Fernando Health Center, Madrid, Spain
  20. 20Directorate General of Public Health, Las Palmas de Gran Canaria, Spain
  21. 21Innovation and International Projects Unit. Vice-Directorate for Health Research and Documentation. Directorate General for Research, Education and Innovation. Madrid Health Ministry, Spain
  22. 22Evaluation Unit (SESCS), Canary Islands Health Service (SCS), Tenerife, Spain

Abstract

Introduction Virtual Communities of Practice (VCoP) offer information and exchange possibilities for people with chronic diseases. This could be especially valuable for self-management in patients with multimorbidity. The first phase of this project is based on building a Patient Journey Map through a co-creation process with professionals and patients.

Methods We employed a tailored experiential design approach to co-design the VCoP with patients and professionals. Inclusion criteria for patients was to have ≥2 chronic diseases and aged 30–60. Fourteen patients were recruited. Participation consisted of virtual meetings with semi-directed questions that allowed us to collect the necessary information to know the needs of these types of patients and design a Patient Journey Map. Subsequently, they were able to test the pilot of the platform with specific content designed.

Results of co-creation process Patients and professionals participated addressing barriers and needs. They built the trajectory of care and designed a Patient Journey Map so their needs could be addressed by the vCoP. The testimonies of patients and professionals were very different:

Professionals identified 3 very well-defined phases (Pre-diagnosis and diagnosis, after diagnosis and follow-up). These phases were sequential and did not vary from one individual to another.

Patients identified several areas of care, where the deficiencies of the health system and the need for respect and empathy starred in his journey map. They did not clearly identify phases on the trajectory, but rather described a circular map where feelings and thoughts were common at various stages.

Discussion and Conclusion A person-centered co-design process of a vCoP may facilitate the empowerment of multimorbid patients. e-EMPODERAT project aims to improve the patients‘ understanding of their chronic diseases and enhance self-care quality.

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