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ISDM Conference – AMH Randomised Trial Abstract
211 Shared decision-making in endometriosis
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  1. Laia Ramos-Masdeu1,
  2. Francisco Carmona2,
  3. Gemma Casals2,
  4. Joan Escarrabill3,
  5. Meritxell Gracia2,
  6. Sara Iglesias4,
  7. M Ángeles Martínez-Zamora2,
  8. Jordina Munrós5,
  9. Josep Perelló6,
  10. Oriol Porta7,
  11. Lara Quintas2,
  12. Montse Moharra1
  1. 1Agency for Health Quality and Assessment of Catalonia, Barcelona, Spain
  2. 2Gynecology service. Hospital Clínic de Barcelona, Barcelona, Spain
  3. 3Patient Experience Observatory. Hospital Clínic de Barcelona, Barcelona, Spain
  4. 4Gynecology service. Hospital Germans Trias i Pujol, Badalona, Spain
  5. 5Atenció a la Salut Sexual i Reproductiva (ASSIR) Muntanya – La Mina, Barcelona, Spain
  6. 6Gynecology service. Hospital de la Santa Creu i de Sant Pau, Barcelona, Spain
  7. 7Gynecology service. Hospital Mútua de Terrassa, Terrassa, Spain

Abstract

Introduction Shared Decision-Making Tools (SDMTs) play a pivotal role in facilitating active involvement in health-related decisions by integrating scientific evidence with individual preferences and values.

Methods We designed an SDMT for professionals and patients with endometriosis, adhering to the International Patient Decision Aid Standards (IPDAS).1 The development involved various stakeholders, including the Agency for Health Quality and Assessment of Catalonia (AQuAS), primary and specialized care gynecologists, patient-experience experts, patients and patient associations. An expert patient and the Catalan Society of Obstetrics and Gynecology performed the final validation.

The number of web visits were followed-up and user experience was analyzed through a questionnaire.

Results The co-creation process engaged 9 endometriosis experts, 2 shared decision-making experts, 1 patient experience expert, 11 patients and 2 patient associations (Endocat and ADAEC). Launched in July 2023, the tool comprises sections on general information, treatment options, option comparison, preference questionnaires on hormone and surgical treatments, personal stories, and frequently asked questions. The tool was published in Catalan and Spanish on https://decisionscompartides.gencat.cat/ and was presented through a webinar. Within five months of publication, it garnered 12,462 users, with a satisfaction rate averaging 3.4 out of 5 and 30% of users assigning the highest score.

Discussion The co-creation process, involving both professionals and patients, ensures a comprehensive approach, addressing the needs of all stakeholders. The tool’s presentation in webinars, patient associations, and scientific congresses significantly enhanced its visibility and contributed to its widespread dissemination. Currently, we are working on an Implementation Guide and an evaluation strategy to assess the tool’s utility for both professionals and patients

Conclusions The development and publication of the SDMT for endometriosis received positive feedback from the users. The ongoing development of an Implementation Guide and evaluation strategy aims to expand the tool’s usage within Catalonia’s healthcare system, providing valuable insights for continuous improvement.

Reference

  1. http://ipdas.ohri.ca/

https://doi.org/10.1136/bmjebm-2024-SDC.210

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